baps-online

Further to the consultation event held on 7 March 2012, I would like to invite you to a follow up event on 4 July 2012, 930-1130am in the Peel Room, Bury Town Hall.

The aim of this event is to feedback both the results of the March event and also the results of the wider consultation which is being held from 5 March until 26 May 2012. We will also outline the next steps for Bury at this meeting. Further details will be sent out to confirmed attendees nearer the time. If you would like to book a place on this event please contact Emma on 0161 253 7975 (Monday to Friday, 2-5pm) or email e.critchley@bury.gov.uk.

In the meantime, may I please ask you to complete an appropriate questionnaire. There are three separate questionnaires, one for carers, one for customers and one for professionals. These are available online at:

• Carers questionnaire:

https://www.surveymonkey.com/s/Autism_Survey_Carers

• Customer questionnaire:

https://www.surveymonkey.com/s/autism_customer_survey

• Professionals questionnaire:

https://www.surveymonkey.com/s/Autism_survey_Professionals

If you prefer to get help to complete a questionnaire by telephone, call us on 0161 253 7975 (Monday to Friday, 2-5pm). If you wish to be sent a hard copy of any of the questionnaires together with a pre-paid return envelope, please contact us on 0161 253 7975.

The closing date for receipt of questionnaires is 26 May 2012.

email: j.waite@bury.gov.uk

We have been contacted by Annika Wilmot whose part of the MA12 Productions at the University of Chester. They are currently in the process of researching for their next documentary film whose focus will be on siblings of children with autism. She would be very interested to hear from anyone who would be interrested in taking part in the film. Annika’s contact email address is 1100023:chester.ac.uk

Regards

Barbara

Barbara Whillans

Project Administrator
The National Autistic Society
Family Services Development Project
Anglo House, Chapel Road
Northenden
Manchester M22 4JN
Tel: 0161 998 4667
Fax: 0161 945 2703

Email: barbara.whillans@nas.org.uk

The Autumn Group – Support for families caring for children and adults affected with Autism – Are proud to present-

We Luv the 80s!!!
Parent Carers Social Night
Saturday 26th May 2012
8pm onwards
Brookdale Golf Club,Woodhouses, Medlock road, Failsworth,M35,9QW

This is a FREE (adults only) event for parent carers to relax, enjoy great food, great music and boogie the night away with The Autumn Group team! It will also be a great chance to meet other parents and family members who care for children and adults affected by Autism!! Remember we are travelling back in time to the 1980s so fancy dress is encouraged!!! To get your free tickets contact a member of The Autumn Group team on 07581-103-771
Or email autumngroup@live.co.uk
The Autumn Group
Registered Charity-1146731

Date: Wednesday 27th June 2012, 8.45am – 4.30pm | Venue: Ambassadors Hotel, London, W1

Rompa will have a stand at the conference.

Individuals with autism who display what are referred to as ‘challenging behaviours’ are known to be among the most vulnerable in society. The appalling events that led to the closure of Winterbourne View hospital in Bristol last year are just the latest in a very long line of similar cases that have occurred over many decades. We continue to see families struggling daily with the enormous demands of managing such behaviours in the home – often to breaking point. We see staff in schools and care services struggling to manage and vulnerable individuals frequently excluded. But does it have to be like this?

Despite growing evidence of poor efficacy and the harm they do we continue to see young people prescribed powerful drugs to mask the effects of pain, their personality or their attempts to communicate. We see restrictive physical interventions, punitive sanctions and the physical and emotional abuse of people who are already suffering huge levels of stress and anxiety. Additionally they may be placed far away from their homes- often at a high financial cost and for very long periods of time. But does it have to be like this?

This conference, chaired by Lorna Wing and Richard Mills will bring together some of the foremost experts in the field to share their experiences of working with this exceptionally vulnerable group. Speakers will describe research and methods of working that have been shown to be effective and ethical yet avoiding those approaches that cause harm not just to the person but to all of those concerned. It will be of interest to individuals with autism, parents, health; social care and education professionals and all who have an interest in learning about more effective ways of working with children and adults affects by autism- and who wish to invest in the development of practices that are ethical, respectful and humane and are fit for purpose.

Speakers include Professor Peter Tyrer, Imperal College, London; Dr Juli Crocombe, South Staffs NHS Trust; Mr Ben Higgins, Broomhayes School, The National Autistic Society; Mrs Linda Woodcock and Dr Andrew McDonnell, Studio 3; and Professor Chris Oliver, and Dr Caroline Richards, the University of Birmingham. In response to feedback from previous conference delegates, we have changed the venue and lowered the cost of the conference so as to make it more affordable. Therefore, costs are as follows:

Rate of £155 per delegate

A small number of subsidised places are available for individuals with ASC and family members/carers – please contact Helen Finch for more information.

Email. helen.finch@researchautism.net or Tel. 020 3490 3091.

Research Autism: London Office: Adam House, 1 Fitzroy Square, London W1T 5HE. Registered Office. Church House, Church Road, Filton, Bristol BS34 7BD . Registered Charity No. 1096508

Sunday 22 April on BBC1 at 16.05 and on Wednesday 25 April on BBC 2.

We are delighted to announce that Research Autism has been chosen to be one of the BBC’s featured charities for their Lifeline programme, the BBC’s monthly television charity appeal. A ten minute film about Research Autism and the work we do will be transmitted on Sunday 22 April on BBC1 at 16.05 (after Human Planet and before Songs of Praise!) and repeated on Wednesday 25 April on BBC2 at 13.30. We are particularly pleased that the appeal will be aired during April, which is Autism Awareness Month. The programme will be presented by One Show presenter and pop vocal coach Carrie Grant. As a mother of two children with autism, Carrie understands the constant challenges that families have to face in living with the condition.

http://www.bbc.co.uk/programmes/b01gykyj